Associate Director of Communications & Patient Advocacy

About Hemab

At Hemab, we're redefining how bleeding and thrombotic disorders are understood and treated. Our goal: become the ultimate clotting company through patient-centric innovation and advocacy-driven engagement. With headquarters in Boston and Copenhagen, we cultivate an agile environment where curiosity, creativity, and data-driven insights fuel success.

We seek an innovative colleague who'll challenge conventional thinking about how biotech companies advocate for patients and drive systemic change for underserved communities.

Strategic Impact

This role directly supports Hemab's path to becoming the ultimate clotting company by:

• Building patient communities that accelerate clinical trial recruitment
• Creating advocacy infrastructure that supports global market access across 4+ indications with 2+ launches in 3+ regions by the end of 2030
• Coordinating corporate communications strategy that amplifies patient advocacy while driving business objectives

Lead the Advocacy Revolution in Bleeding Disorders

We're seeking a digital fluent advocate who can amplify voices of people with bleeding disorders. You'll lead our patient advocacy strategy from grassroots community building to social media campaigns, using digital tools and storytelling to create real systemic change.

Your work will transform how society understands, funds, and treats rare bleeding disorders going beyond traditional pharma communications to create genuine advocacy impact that changes lives and improves healthcare access.

Translation: Turn patient stories into systemic change, and digital communities into advocacy armies.

What You'll Do

Build Launch-Ready Advocacy Network & Drive Global Engagement

• Lead advocacy strategy across patient communities, medical societies, and healthcare stakeholders including FDA patient voice initiatives and regulatory engagement.
• Partner with multiple existing and emergingpatient advocacy organizations to coordinate systemic change efforts and mobilize communities around Glanzmann Thrombasthenia, Von Willebrand Disease, Factor VII Deficiency and other bleeding disorders.
• Foster creation and establishment of new patient advocacy groups to address overlooked communities around the world with focus in the United States, Middel East, Europe, and Japan.
• Develop patient champion programs turning lived experiences into powerful narratives and empower share decision making in the community

Drive Digital Engagement

• Own social strategy turning patients into advocates across all platforms; create viral content making bleeding disorders impossible to ignore by KOLs, Payers, and other healthcare leaders to elevate bleeding disorders
• Launch campaigns driving concrete healthcare access improvements and system changes

Who We Want

Must Haves

• Advocacy-first mindset willing to fight systemic barriers for patient benefit
• Digital fluent using social platforms and analytics to drive community mobilization
• Experience with healthcare advocacy, grassroots organizing, or community building
• Brand & launch experience: Experince withproduct launches or brand campaigns in healthcare/pharma
• Bleeding disorders or hematology background preferred, or willingness to develop deep therapeutic area expertise
• Thrives in fast-paced biotech environments with real time problem solving and rapid decision-making

Why This Matters

You'll build the advocacy infrastructure transforming how society treats rare bleeding disorders. You'll pioneer the digital strategy that becomes the model for rare disease advocacy, while accelerating your career in a fast-growing biotech with direct leadership access.

Ready to transform healthcare access for patients with rare bleeding disorders?

Apply with examples of advocacy or community organizing work you've led using digital tools.